Welcome to the website of

Featured by the PH&HP-team the European advocacy group for patients with primary hyperoxaluria welcomes you! We are pleased to inform you about this rare metabolic disease and hope that you find our pages informative and appealing.

The attached map shows you where we all are currently located and which languages we all speak. You are also welcome to contact us if you have specific questions. We would of course be pleased to welcome you as a member later on!

About Us

News

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Current clinical studies

on primary hyperoxaluria.

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Next virtual meeting

on the topic of primary hyperoxaluria in March 2021!

Summary of the First European Primary hyperoxaluria (PH) Patient Meeting (2020) and Answers to the Questions received after the meeting

Read more..

In our own matter:

We are recognizing an increasing amount of unauthorized use of copyright-protected data of this website. We would like to bring your attention to copyright regulations again, which you can find in the imprint of this website. Please, comply with these regulations, otherwise we reserve the right to take legal actions. For any question, please send an email to info@ph-europe.net.

Patient reports

Diagnosis after acute renal failure.

Patient report on primary hyperoxaluria type 1..

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Eva (20 month old) with PH2.

Patient report of a family on primary hyperoxaluria type 2 ..

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Late diagnosis after multiple kidney stones and complications after transplantation.

Very emotional report on primary hyperoxaluria type 1..

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Movement, thanks to organ donation!

Theresa has primary hyperoxaluria type 1 and she runs after a combined liver-kidney transplantation at the Bonn-marathon..

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Combined liver and kidney transplantation

A patient tells what she experienced before, during and after her combined liver and kidney transplantation..

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"Despite everything, I have not given up hope.."

A patient reports on the course of her disease..

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"Again and again pain and anxiety"

A patient report from Brianda with PH1 from Spain..

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Family with three daughters, two of them (6 and 3 years old) with PH type I

A patient report from Switzerland..

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Leo (12 years old) with PH III.

Patient report on primary hyperoxaluria type III..

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Videos

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Clinical signs and symptoms

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Diagnostic evaluations

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Current treatment options

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Abulena, 12 years old, speaks about hyperoxaluria type 1.

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Theresa, 25 years old, speaks about hyperoxaluria type 1.

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Rabea, 19 years old, speaks about hyperoxaluria type 1.

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Fatih, 9 years old, talks about his experiences with hyperoxaluria type 3.

Contact

Please contact us

Address

PH-Europe, c/o. David Attar, Franzensbaderstrasse 23, 14193 Berlin, Deutschland

Phone:

+49 (0) 163 4000 987

Email Address:

info@ph-europe.net

You’ll Never Walk Alone!

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