Welcome to the website of

Featured by the PH&HP-team the European advocacy group for patients with primary hyperoxaluria welcomes you! The pages you will visit are based on individual input of medical professionals, patients, parents, translators, artists, IT specialists and friends of PH Europe. All the content presented is independent of any outside sponsoring, with the exception of grants received from the German PH Self-support group so far. Our page is the source of first information about a rare disease and guidance for patients wherever they live in Europe. The input from patients and parents telling their individual stories is here of paramount importance. Nobody has received any earnings or reimbursement for her/his input. The idealism to help has been the main driver, which should remain, as it is the best motivator for such a great project. Hence, many, many thanks, for all who have helped so far! Let us move forward together and please, remain supporting us!

Image

About Us

News

Image

Current clinical studies

on primary hyperoxaluria.

Read more

Summary of the First European Primary hyperoxaluria (PH) Patient Meeting (2020) and Answers to the Questions received after the meeting

Read more..

In our own matter:

We are recognizing an increasing amount of unauthorized use of copyright-protected data of this website. We would like to bring your attention to copyright regulations again, which you can find in the imprint of this website. Please, comply with these regulations, otherwise we reserve the right to take legal actions. For any question, please send an email to info@ph-europe.net.

Patient reports

Diagnosis after acute renal failure.

Patient report on primary hyperoxaluria type 1..

Read More

Eva (20 month old) with PH2.

Patient report of a family on primary hyperoxaluria type 2 ..

Read More

Late diagnosis after multiple kidney stones and complications after transplantation.

Very emotional report on primary hyperoxaluria type 1..

Read More

Movement, thanks to organ donation!

Theresa has primary hyperoxaluria type 1 and she runs after a combined liver-kidney transplantation at the Bonn-marathon..

Read More

Combined liver and kidney transplantation

A patient tells what she experienced before, during and after her combined liver and kidney transplantation..

Read More

"Despite everything, I have not given up hope.."

A patient reports on the course of her disease..

Read More

"Again and again pain and anxiety"

A patient report from Brianda with PH1 from Spain..

Read More

Family with three daughters, two of them (6 and 3 years old) with PH type I

A patient report from Switzerland..

Read More

Leo (12 years old) with PH III.

Patient report on primary hyperoxaluria type III..

Read More

Videos

Image

Clinical signs and symptoms

Image

Diagnostic evaluations

Image

Current treatment options

Image

Abulena, 12 years old, speaks about hyperoxaluria type 1.

Image

Theresa, 25 years old, speaks about hyperoxaluria type 1.

Image

Rabea, 19 years old, speaks about hyperoxaluria type 1.

Image

Fatih, 9 years old, talks about his experiences with hyperoxaluria type 3.

Contact

Please contact us

Address

PH-Europe, c/o. David Attar, Franzensbaderstrasse 23, 14193 Berlin, Deutschland

Phone:

+49 (0) 163 4000 987

Email Address:

info@ph-europe.net

You’ll Never Walk Alone!

Image