Based on the German PH Selbsthilfe, we have joined forces as pan-European advocates for patients with primary hyperoxaluria. We are pleased to inform you about this rare metabolic disease and hope that you find our pages informative and appealing.
The attached map shows you where we all are currently located and which languages we all speak. You are also welcome to contact us if you have specific questions. We would of course be pleased to welcome you as a member later on!
Here some impressions of the RAREDISEASEDAY 2020..
The Meeting is postponed to December 1st 2020, either as face to face, or depending on the situation, as web based Meeting.
will take place together with the meeting of the German PH self-help on 19.09.2020 in the Children's Kidney Centre in Bonn.
June 6, 2020